Autism-Advocacy.org
Advocating for Individuals with Autism and their Families while Educating Communities
 


Annual
Autism Advocacy
Organization

 

 Annual
Autism Event
April 13, 2010

2010 Flyer

Contact Me at:
scolon@dejazzd.com

Last year's Event
Previous Events

How this
journey began....
....love never ends



How it all began...
Autism Advocacay Organization

began as an idea and
the motivation
which continues to
drive it today has
never lost sight
of the mission
and looks to the future
with tremendous
Hope and Success.


 

Resources for Families
(Local & Pennsylvania)

PA Dept. of Public Welfare
Autism Affairs

2010 Autism Mini Grant Applications

Dept. of Public Welfare
717-787-2600
Know the:
The Red Flags
Of Autism Related Disorders




Coming Soon
A book offering practical strategies and a different perspective on understanding children with Autism Spectrum Disorders for
who they are and seeing difference as a positive instead of a negative.

2010 Annual Autism Advocacy Event
Save the date...April 13, 2010
This Year's Highlights
Project LifeSaver International
Is a public safety program to protect and locate missing persons due to wandering.  This includes individuals with Autism.

Project Lifesaver International was established in April, 1999 as an initiative of the 43rd Search and Rescue Company of the Chesapeake Sheriff's office. 

The Union County Sheriff's Department became interested in the program in 2008.  A grant was written to the Autism Association and there were eight grants available for the entire United States and Union County received the first of those grants.  There are currently seven people on the Project LifeSaver Program in Union County.

Project Lifesaver's mission is to use state of the art technology in assisting those who care for their loved ones who wander and may become lost to help locate them and bring them home.

Deputy Sheriff Ernest Delp will demonstrate how Project LifeSaver is used and answer questions. There will be an opportunity for individuals to sign their children with Autism up for the services if they are eligible as Union County residents.

  Organizations and Law Enforcement Agencies have endorsed and pledged their support to Project Lifesaver International, "Bringing Loved Ones Home."




Union County Sheriff's Department
Ernest Ritter, Sheriff, Ernest Delp, Deputy Sheriff, from left
Second row Chief Deputy Scott Hahn, Sgt. Chad Lehman,
Third row  Jonathan Moyer, Deputy Phil Resseguie.








 

John Alunni, Complaint and Grievance Coordinator, North Central Community Care Behavioral Health.
John will speak about the process parents may go through in filing a complaint and or a grievance.  A Complaint is against a provider while a Grievance is what you file when you do not agree with CCBH's decision that a service you or your provider asks for is not medically necessary.  John will answer questions and walk parents through this somewhat confusing process.
 


ASERT


Penn State Hershey

Shiyoko Cothren, MHA, Central Region ASERT will be speaking on Autism, Service, Education, Research and Training and ongoing projects and updates

The Pennsylvania Bureau of Autism Services has responded to the need for better services for the autism community by creating three Autism Services, Education, Research, and Training (ASERT) Centers across the commonwealth. Penn State Hershey is a partner of Autism Central PA, the ASERT center for the central region of Pennsylvania. The other Autism Central PA partners are the Philhaven Center for Autism and Developmental Disabilities and The Vista Foundation.

The ASERT centers are charged with the task of enhancing the lives of Pennsylvanians with autism, of all ages and abilities, by improving regional access to quality services and interventions, providing information and support to families, training professionals in best practices and facilitating collaboration among providers of services throughout their region. For information about our regional autism center, visit AutismCentralPA.org or call 877-231-4244.

"A grateful Thank you to everyone who loves and supports others who may have differences, knowing that being different is not a negative thing, but rather something that makes them unique and very special.  I am blessed to have been bringing this event to you all for more than five years now and I look forward to many more years. -Susan Colón


 
Purchase a puzzle piece to support Autism Advocacy Puzzle Pieces will be on exhibit the evening of the event. Puzzle pieces are available for $1 each

Make a Charitable Donation
to Autism Advocacy Organization
susan@autism-advocacy.org
This Years Winners for Autism Advocacy Awards:
Autism Awareness-
Union County Sheriff's Dept. for their insightful recognition of the need to protect and assist individuals who wander in helping keep them safe with Project LifeSaver.

Autism Education -
Tim Troxell, Verizon Wireless, the Cellular Connection. Tim is a parent who wanted to become more involved in helping parents and families.  Tim and Susan have decided one of the best ways to help families is to offer them support.  The new autism support group Hope in Autism will begin offering support to families in spring 2010.

Autism Acceptance- Weis Markets for their continued support of the Annual Autism Event for the past six years.  Thank you so much for supporting this event which has a zero budget.  Your food donations each year are greatly appreciated.
 
 


"I believe in You"
from Autism Digest Magazine




 

 

Definition of Terms:
What is ABA?
What is an IEP?
What is Sensory Integration?

 

 

What Act 62 will mean to your child and your family:

Why was House Bill 1150 introduced by Speaker Dennis O’Brien?
This legislation was introduced to mitigate the heavy burden caused by health insurance companies’ discrimination against individuals with autism.  While its language has been revised several times, and while other matters were added to the bill before it became law as Act 62, the essence of the autism insurance reform legislation remains intact.

What does Act 62 do?
In regards to autism insurance reform, Act 62 does three main things:
1.
     it requires private health insurance companies to begin covering the costs of diagnostic assessments for autism and of services for individuals with autism who are under the age of 21;
2.
     it requires the PA Department of Public Welfare to cover those costs for individuals who have no insurance coverage, or for individuals whose costs exceed $36,000 that year; and
3.
     it requires the PA Department of State to license professional behavior specialists and to establish minimum licensure qualifications for them.
 
What coverage is mandated by the law?
Act 62 requires coverage for diagnostic assessments, pharmacy care, psychiatric care, psychological care, rehabilitative care, and therapeutic care.  
These categories of mandated services are defined in the law.

Read More About Dennis O'Brien and his work in Autism

Thank you to Governor Ed Rendell for his
continued support to improve services for
individuals with an Autism Spectrum Disorder.


Governor Ed Rendell, Susan Colόn and her sons.
The children fondly refer to the Governor as
'The President of Pennsylvania'

 


Inspirations
Stories from Parents on the journey
that will inspire you.



For Physicians

On a national average, pediatricians and physicians are failing to refer children for free and confidential assessments, this must change...
(more information for Physicians)

For Educators
As educators and school districts seek to understand and meet the needs of students they need the assistance of professionals trained in the field of autism and valuable information and resources.  These children are individuals and their IEPs must reflect their needs....
(More information for Educators)